Bisphenol A and ADHD

Apparently major retailers in Canada are pulling off the shelves products that contain bisphenol A because they’re anticipating an announcement from Health Canada that the chemical is “dangerous.” (See the April 15, 2008 article “Major retailers pull bottles containing bisphenol A” on the CTV News web site.

Bisphenol A or BPA is a component in polycarbonate, #7 plastic that is used to make food and drink containers (including baby bottles). It is also used in the lining of soft-drink and food cans.

No action from the Food and Drug Administration in the U.S. on it yet, but apparently, as The New York Times reports in its April 22, 2008 article “A Hard Plastic Is Raising Hard Questions,” the chemical is”facing increasing scrutiny by health officials in Canada and the United States.”

What I found interesting in the article on CTV is the following quote: “There are over 150 peer-reviewed studies that show that bisphenol A is linked to breast cancer, to attention deficit disorder, to obesity and a whole host of developmental problems.

I knew about the studies linking BPA to cancer. I did not know there’s a link between BPA and ADHD. One more thing I need to do a bit more research on.

Nonverbal autistic teenagers “speak out”

Amanda Baggs (see the entry “Non-verbal Autism and Intelligence – some myths debunked”) is not the only nonverbal autistic person who communicates through a computer.

More than a year ago, in March 2007, PBS Boston station, WBUR broadcast a program about about Portia Iverson, an Emmy-winning Hollywood art director and the author of Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism, and her son Dov who was diagnosed as severely autistic when he was 18 months.

After the Iversons learned how Soma Mukhopadhyay from Bangalore, India has taught her autistic son Tito to communicate through a board with alphabet and numerals written on it, they have invited Mukhopadhyay and Tito to the United States, and Mukhopadhyay has taught the Prompting Method to Dov as well.

Mukhopadhyay is now the Executive Director of HALO (Helping Autism Through Learning and Outreach) – a non-profit organization located in Austin, Texas where she provides 1:1 educational instructional sessions for students with autism and similar disorders.

Iverson, who co-founded the Cure Autism Now Foundation (now Autism Speaks), also runs a web site www.strangeson.com which discusses not only the book but, among other things, the pointing method as well.

A couple of months ago, in February 2008, ABC News showed a story about Carly Fleishman, a thirteen-year-old who has begun to type on the family computer. (You can see the footage if you click on the “play” button in the picture of Carly.)

As I understand, there’s a disagreement whether both Amanda Baggs and these stories are a hoax, and some people cannot believe that a nonverbal autistic person can communicate, make videos, write poetry, or even just be able to type full sentences. You can see some negative opinions like that in the “Comments” to the entry “Your Opinion Requested: Are Non-Verbal People with Autism Intellectually Capable?” on the Autism Blog by Lisa Jo Rudy.

What is the truth? I do not know.

But just think about Stephen Hawking. He cannot talk, he can communicate only through an adaptive device, yet nobody would deny he’s a genius.

Is it really so hard to believe that autistic people who cannot talk are more aware of their surroundings than they can show?

Yes, it is PDD-NOS after all!

We finally got the neuropsych (neuropsychological testing) results and it is PDD-NOS after all! (See the entry “Autism 101: A basic definition” for more on PDD-NOS.) That may sound like I’m happy and someone might be thinking “Has she gone crazy?” but it’s good to finally have one doctor agree with another (see the first entry “Personal Introduction” about our history of testing and diagnosis. And as far as PDD-NOS goes — we knew it’s a high possibility. It is not the end of the world.

In fact, when I made the same remark in the doctor’s office, she emphatically said “Of course not! Just go and take a walk around the MIT campus!” Laughing out loud, but she’s right, and not just regarding the MIT. I suspect a lot of academics, especially the spacey, absent-minded type ones, have some undiagnosed conditions. I work with academics, so I’ve seen these types often enough to wonder about that myself sometimes.

The doctors haven’t recommended many changes to his IEP, they said they were quite impressed with it being so detailed and with the whole “team” at our son’s school. That was good and comforting to hear.

But they did give us a list of books “helpful in explaining and guiding [...] in fostering play.” We’re supposed to encourage him to “just be a kid.” We’ll try…

Oh, and he may have “challenges with higher-order processes such as executive functions.” (No kidding. We have problems with it too.) So we got a title of a book about executive skills as well.

Looks like I have the reading list all cut out for the next several months. (I’ve also been planning to read all the books mentioned in the “Unwrapping the Gift of ADD” series, and there were quite a few of those.)

There’ll be plenty of material for blogging.

Sari Solden – Part Seven of the Unwrapping the Gift of ADD series

Guest of the seventh lecture in the Unwrapping the Gift of ADD series was Sari Solden.

Sari Solden has a Masters Degree in clinical counseling from California State University and is also licensed as a marriage and family therapist (LMFT). She currently serves on the professional advisory board of the National Attention Deficit Disorder Association and has a private practice in Ann Arbor, Michigan.

In addition, she’s the author of Journeys Through ADDulthood: Discover a New Sense of Identity and Meaning with Attention Deficit Disorder, published in 2002 by Walker & Company and Women with Attention Deficit Disorder: Embrace Your Differences and Transform Your Life, published in 1995 by Underwood Books (second, revised edition was published in 2005).

In short, she said that it’s okay to be disorganized and messy. Well, no… Not quite. At least not exactly in these words.

Solden’s message was aimed primarily (but not only) at women with ADHD – she emphasized how crucial it is for women to move “from perfection to fullness” which (if I understood her point correctly) means to let go of the idea of trying to achieve the impossible and unattainable ideal of perfection in life and instead find strength from embracing one’s differences and learning how to respect oneself and expecting respect from others.

Women, according to Solden, have a harder time getting diagnosed with ADHD because they are not as hyperactive as men and instead frequently are given the diagnosis of depression, which of course is present, because women, more than men, feel more ashamed of themselves if they cannot meet the prevalent cultural expectations of women as being good organizers, housekeepers, and caretakers. There’s more acceptance in the society for men who are disorganized — the absent-minded professor type.

Women are also more likely to overfocus on their deficits than men and have a harder time to seek help. Once they do look for help they also have a harder time with healing and improving their condition because they continue being so critical of themselves.

Solden says that instead of trying to attain the lofty goal of trying to live up the ideal stereotype, women need to redefine their idea of success and learn to build on their strengths and their unique traits, concentrate what they’re good at while not obsessing about but acknowledging and coming to terms with their weaknesses.

(At that point I was thinking that Solden has been saying also applies to children –parents need to help children “experience success” – find an activity that the kids are good at and then teach them to concentrate on the feeling of being successful to understand that they have both strengths and weaknesses.)

Solden also “warned” that once women seek and receive help and get better, they may need to know how to renegotiate relationships, because they frequently become more outspoken and less intimidated by those around them, which might lead to conflicts, because their family members, friends and co-workers may not know how to “deal” with this “new” person, so confident and full of wonderful ideas and energy.

I liked the story that Solden told at that point – at one time when she was getting ready to go to a conference, she kept losing her conference ID (I believe), and her daughter was getting frustrated to the point that she finally said “Mom, you’re a very messy person.” In response Solden asked her “How big a problem is it for you? How important is it whether I’m messy or organized,” explaining that at the conference she will be talking to other women with ADHD who are probably just as disorganized and messy as she is. And the daughter responded “Tell them it’s not important, what you feel inside is important.”

That also seems to be a pattern in women – to concentrate so much on the external and conforming to the perception and expectations of others to the point that it overshadows their own feelings, desires, and ambitions.

Ultimately, Solden said, women need to learn how to let go of the ideal, allow themselves some slack and acknowledge that it’s okay to get help with housekeeping, laundry, babysitting, paying bills, organizing, whatever it takes. And get social support from family, friends, or even virtual friends on the Internet.

I hope it is all right to quote here an excerpt from her book that is posted to her web site. “I said I’ve learned to live successfully with ADD as a woman. The definition of the word successful is very important, because women very often get locked into a fruitless search for an unachievable goal. When I say I’m living successfully, it doesn’t mean that I’m living stress-free. It doesn’t mean that I’m perfectly organized. It doesn’t mean that I don’t have to constantly strategize and struggle. And it doesn’t mean I’m never overwhelmed or that I don’t sometimes still hide.

What it does mean, for me, to live successfully with ADD, is that I’ve found a way to move the focus of my life onto my strengths, my talents and my abilities, to increase my choices and options. […] It means that I’ve learned to separate out my strengths and my weaknesses and to embrace both of those as part of myself, even though it’s a long stretch. I’ve come to accept the fact that I do have deficits out of proportion with the rest of my abilities, and that these do severely impact my life. I’ve learned to separate out the shame, embarrassment, and guilt surrounding these difficulties from my core sense of self.”

If that peaked your interest, you can see more excerpts from Solden’s books on her web site.

Solden also announced that pretty soon she will be launching a new web site and encouraged everyone interested to contact her to become part of its “special pre-launch group.”

As a sidenote, I also found on her web site a link to “National Study Group on Chronic Disorganization.” Turns out, there exists “a non-profit organization serving professional organizers and related professionals who are interested in the study and methods of serving chronically disorganized people.” I had no idea someone might be interested in studying chronically disorganized people. They even have a clutter hoarding scale.

Shopping for an ADHD diagnosis?

One of the members of the ADD Forums discussion board recently claimed she knows a family who got a diagnosis of ADHD for their child to be able to enroll that child in a gifted program (see posts #42 and #52 of the thread “Re: Unwrapping the Gift of ADD” Program).

I find it hard to believe that there really are people who would do that. I have never met a parent who wanted their child to be diagnosd with ADHD.

Positively ADD by Cathy A. Corman and Edward Hallowell — Part Six of the Unwrapping the Gift of ADD Series

Guest of the sixth lecture (Tuesday, April 29, 2008) in the Unwrapping the Gift of ADD series was Cathy A. Corman, Ph.D.

Cathy Corman, a former assistant professor of history at Harvard University, with a Ph.D. from Yale’s Program in American Studies, and a mother of triplets all of whom have learning differences and ADD, is a co-author of Positively ADD: Real Success Stories to Inspire Your Dreams, a book for 9 to 12-year-olds which she co-wrote with Dr. Edward M. Hallowell, published in 2006 by the Walker Books for Young Readers.

Positively ADD: Real Success Stories to Inspire Your Dreams profiles seventeen successful adults with ADHD:

(disclaimer: I am not 100% sure that the links I posted are about the same person or just a person with the same name, if you think I posted an incorrect link, or think a different link would be more suitable, please do let me know.)

As Corman reported, she got the inspiration to write a book about successful people with ADHD during a trip with her family – while on a flight she read an article about a successful person with ADD and after giving the article to her son to read, he started asking “Could I do that?” as if asking “Could I have a good life as well, like this person?”

Corman discovered that there were no books for children about adults thriving with ADD, people who are happy in life, showing that ADHD doesn’t have to hold one back.

The people Corman and Hallowell interviewed for the book recall having lots of trouble in school, being kicked out of class, feeling ashamed and guilty, or flunking college. However, as adults, they have found a way to turn their ADHD into a “gift” – they come to terms with the diagnosis and found their strengths coming from it.

In closing, Corman emphasized that children with ADHD also need to find a passion, find something that’s fun and that they’re good at, just like the people profiled in Positively ADD: Real Success Stories to Inspire Your Dreams.

You can also read what another successful person (an attorney!) with ADD had to say about this show on the discussion about the series carried on the ADD Forums discussion board.

Peter S. Jensen – Part Five of the Unwrapping the Gift of ADD Series

Guest of the fifth lecture (Monday, April 28, 2008) in the Unwrapping the Gift of ADD series was Dr. Peter S. Jensen.

Dr. Jensen earned his medical degree from George Washington University Medical School and currently is the CEO and Director of the REACH Institute, the Resource for Advancing Children’s Health, created “to accelerate the acceptance and effective use of proven interventions that foster children’s emotional and behavioral health” (formally launched in July, 2007).

From 1989 to 2000, Dr. Jensen was the Associate Director of Child and Adolescent Research at the National Institute of Mental Health (NIMH) and while at NIMH he served as the lead NIMH investigator on the six-site NIMH and Department of Education-funded study of Multimodal Treatment of ADHD (the MTA Study). He has also been involved with the follow-up study of children who participated in the initial MTA Study, the findings of which are discussed in a July 20, 2007 press release from the NIMH titled “Improvement Following ADHD Treatment Sustained in Most Children, But Linked Problems Persist Into Adolescence – Major Follow-up Study”.

Dr. Jensen is also a co-chair of the School Mental Health Alliance, “a coalition of over 25 organizations with interests in advancing school-based mental health services,” which in 2005 released a 37-page-long position paper “Working Together to Promote Academic Performance, Social and Emotional Learning, and Mental Health for All Children,” distributed to members of the Senate by Senators Pete Domenici and Edward Kennedy.

Last but not least, in addition to writing numerous articles for scholarly and academic journals, Dr. Jensen is also the author of Making the System Work for Your Child with ADHD (Making the System Work for Your Child), published in 2004, by Guilford Press; co-author of Toward a New Diagnostic System for Child Psychopathology: Moving Beyond the DSM, published in 2006 also by Guilford Press, and co-editor of Parent Empowerment Advisors Guide (Improving Children’s Mental Health Through Parent Empowerment: A Guide to Assisting Families) published by Oxford University Press in 2008.

Dr. Jensen’s message tied in with what Dr. Hallowell and Kathy Kolbe were saying in previous interviews – unconditional love and support of the family and other adults make the biggest difference over time in a child’s life. Children need to know that they are loved and that ADHD will not hold them back in reaching the stars. He also emphasized the importance of having good relationship with all people involved in child’s treatment, therapy, and schooling, so that both the child and the parents feel comfortable with everyone on the “team.”

Later in the program Dr. Jensen discussed adult ADHD, and the need for practitioners to be adequately trained and educated in diagnosing adult ADHD which manifests itself differently than childhood ADHD, and might show up in being inattentive, impulsive, missing deadlines, and failing to make up to promises. He commented that even though the Civil Rights Law guarantees accommodations for people with disabilities, many individuals with ADHD are unwilling to admit that they have ADHD to their boss and co-workers and request for accommodations for the fear of losing their job. Yet, Dr. Jensen noted, even adults need to have a supportive team around them to succeed – their spouse, their family, their doctor, maybe a coach, and if possible an understanding boss and co-workers.

Non-verbal Autism and Intelligence – some myths debunked

The idea that non-verbal autistics have low IQ in general and are unaware of their surroundings is a myth that has to be debunked.

Consider Amanda Baggs, featured in the article “The Truth About Autism: Scientists Reconsider What They Think They Know” by David Wolman in the March 2008 issue of Wired Magazine.

The 27-year-old Amanda Baggs is autistic and “non-verbal” – she cannot speak, but that does not mean she does not communicate. If it wasn’t for technology, nobody would know what she’s thinking, how she’s feeling, and, quite frankly, that she’s a pretty amazing person. Luckily, she can communicate through the DynaVox VMax computer and through her very powerful YouTube videos and her blog Ballastexistenz, has become an advocate for human rights for the disabled and for the acceptance of people like her.

(As a sidenote, I have linked to the “About” page on Amanda Baggs’ blog because that’s where she explains the title of the blog and refers to the “German eugenics movement against disabled people — which, for reference, predated Nazism” and “was heavily influenced by American ideas.” By the way, Stephen Murdoch, the author of IQ: A Smart History of a Failed Idea also wrote about the eugenics movement in his book.)

Baggs’s “In My Language” video, “is a statement about what gets considered thought, intelligence, personhood, language, and communication, and what does not.” I hope you’ll watch it.

David Wolman’s piece also mentions an article by Michelle Dawson, Isabelle Soulières, Morton Ann Gernsbacher, and Laurent Mottron, titled “The Level and Nature of Autistic Intelligence” published in the August 2007 issue of the Psychological Science, a journal of the Association for Psychological Science, published by Blackwell Publishing.

You can’t see the full text of the article unless you are a member of the Association for Psychological Science or have a subscription to the journal, but you can see the abstract.

The first author of the article, Michelle Dawson, is autistic as well. In her blog entry about the article being accepted for publication she writes “there should be a lot more caution than is currently the case, when making assumptions about what autistics can or can’t do. Some serious rethinking is necessary, about intelligence in autism and possibly intelligence in general.”

Current APS President, Morton Ann Gernsbacher, the Vilas Research Professor and Sir Frederic C. Bartlett Professor of Psychology at the University of Wisconsin-Madison, and a co-author of “The Level and Nature of Autistic Intelligence” wrote for the April 2007 issue of the Observer (also published by the APS) an article titled “The True Meaning of Research Participation” which is worth reading as well.

ADDA – Attention Deficit Disorder Association – Part Four of the Unwrapping the Gift of ADD series


Guests of the fourth session (Thursday, April 24, 2008) in the Unwrapping the Gift of ADD Series were board members of the Attention Deficit Disorder Association (ADDA), “the worlds leading adult ADHD organization dedicated to providing information, resources and networking opportunities to adults with Attention Deficit/Hyperactivity Disorder (AD/HD) and the professionals who serve them.”

The association organizes an annual national conference, which this year will take place on July 10-13, 2008 at the Hyatt Regency Minneapolis, Minnesota.

Members of ADDA also receive FOCUS, the quarterly publication of the organization and have access to weekly teleclasses on ADHD.

ADDA has again led the way for the creation of a U.S. Senate resolution designating September 19, 2007 as “National AD/HD Awareness Day.”

The following guests participated in the conversation about ADDA and coaching individuals with ADDA:

David Giwerc, immediate past president of ADDA, also Master Certified Coach (MCC) and Founder/President of the ADD Coach Academy, “a nationally recognized, comprehensive training program designed to teach the skills essential for powerful coaching of individuals with AD/HD.”

Linda S. Anderson, current president of ADDA, also MA, MCC, SCAC, a member of the International Coach Federation (ICF), a Golden Circle member of the National Association of Professional Organizers (NAPO) and co-founder of the Philadelphia NAPO chapter, and founder of Getting Clear coaching practice, specializing in coaching adults with ADHD.

Evelyn Polk Green, MS.Ed, President Elect, a Past President of the CHADD (Children and Adults with Attention Deficit Hyperactivity Disorder) National Board of Directors, an adult with AD/HD and the mother of two sons, both of whom are also diagnosed with AD/HD.

Beverly Rohman, ADDA board member, ADHD coach and consultant for learning differences and school searches. She is the founder of The Learning Connections, a coaching practice “working with students, families and adults with Attention Deficit Disorder and other learning and life challenges.”

The organization seems to be geared mostly toward adults with ADHD, however, in the FAQ I was glad to find a reference to an organization I did not know existed – Council of Parent Attorneys and Advocates, Inc. (COPAA), “an independent, nonprofit, §501(c)(3) tax-exempt organization of attorneys, advocates and parents” whose “primary mission is to secure high quality educational services for children with disabilities.”

Kathy Kolbe and Conation – Part Three of the Unwrapping the Gift of ADD series

The guest of the third session (Wednesday, April 23, 2008) in the Unwrapping the Gift of ADD Series was Kathy Kolbe.

Kathy Kolbe is a great speaker and her message was very inspiring – we are who we are, each of us is different, and we have to accept each other for who we are and not criticize one another and try to change one another to behave and think “our way.”

Kathy Kolbe is the daughter of Eldon F. Wonderlic, a pioneer in the field of Industrial Psychology (cognitive testing) and founder of Wonderlic,Inc.

During the show, Kolbe recalled how she used to ask her father about his tests and questioned the premise and the importance of cognitive (or IQ) testing. She disagreed with the idea that someone’s intelligence is the most crucial measure of a person and wondered “how how smart you are can have anything to do with what you can do in this world.” She thought there’s more to a person than intelligence and her father suggested she go and try to find it out.

So she did and founded Kolbe Corp.

And while the mission of the company her father founded is to help “thousands of employers worldwide hire and keep the best employees” the goal of her company, as stated on the “About Kolbe Corp.” page is to “provide materials, insights, and experts to help people of all ages identify their instinctive talents, develop their confidence, and use their innate abilities to succeed in a plethora of situations, from getting through school to running a business.”

Kolbe emphasized during the show that everyone was created to be perfect at something, so there are no best (and worst) among us, we just have a different way of seeing and doing things. We all can be successful and happy in life if we have the freedom to do things the way that shows our strengths. We also have to allow children to do the same.

To help figure out what drives us, what makes us tick, our Modus Operandi (MO), she “developed an instrument to measure the instinctive action and problem-solving styles of individuals. This dimension of the mind, called ‘conation,’ determines the way in which each individual might feel most comfortable and perform best in undertaking any action.”

On the Kolbe Corp. web site you can read more about the Kolbe Concept, about “conation,” and about the “Four Action Modes.”

You can also read about this idea in Kathy Kolbe’s books: The Conative Connection : Acting on Instinct published in 1997; Powered by Instinct: 5 Rules for Trusting Your Guts published in 2003; and Pure Instinct published in 2004.

When asked why we need to know about “conation,” Kolbe answered that there’s a tendency to misidentify ADHD as a cognitive issue, when in fact, it’s just the matter of Modus Operandi.

Kolbe used a term “false ADHD” when she talked about how some children whose Modus Operandi is to resist structure, to be active, and to learn by doing and touching, can be misidentified as having ADHD. (Unfortunately, neither Dr. Hallowell nor Dr. Handelman asked her what the difference between “false” and “true” ADHD is. I would have like that explained.)

While talking about schools, school rules, and curriculum Kolbe said something I found very interesting – that while 20% of general population has a tendency to insist on structure, following procedures, etc., as much as 70% of teachers are like that (because they instinctively choose a profession that is highly structured and organized).

Children whose MO is different from their teachers’ MO, suffer at school and are told that they have a problem, when in real world their tendency to multitask, be always “on the go” and skip the details for the big picture usually turns out to be a great strength.

Another interesting thing Kolbe said about schools is that it’s an environment where everyone has the same job, which has to be done the same way, every day after day, while in the real workplace there may not be much consistency, pretty much everyone does something different or in a different way and employees often need to switch gears, jump from project to project, etc.

(I ought to note that Kolbe pointed out that teachers do not intend to make suffer, they just simply may not understand that some of their pupils have a completely different way of doing and learning things, they need to have that pointed out and explained to them.)

Kolbe also talked about relationships and how a lot of conflicts are due to the fact that people don’t understand the “nature” of the other person and try to change them when in reality, that’s impossible and just makes the other person miserable.

To measure people’s Modus Operandi and help them explain what they’re good at, the company offers several “Kolbe Indexes/Instinct Assessments” which can be taken online (for a fee of course). You can see the questions and sample results without paying. If you don’t have much time to spend on the Kolbe Corp. site, at least view (listen to) the Sample Result for Youth (you have to allow pop-ups to be able to open that).

In closing, Dr. Hallowell praised the concept of “conation” saying we should “embrace it” because “it’s a tool to help in understanding who we are, it’s freeing and validating – I’m the way I should be.”